He has his own drum and beat that
we dance to
He has his own drum and beat that we dance to
Much of my son KJ's life he has marched to his own drum...a
different drum. I for the last 17 nearing 18 years have been able to see the
world in his view. I have seen the excitement
as well what is frustrating and what hurts.
I have watched him accomplish many things just to spite those who said he could
never succeed. KJ was diagnosed at the age of 6 with ADHD; I knew there was
something more with my son. He really didn't start to talk until he was two and
still it was only sounds and one word Dada. He had a heightened sensitivity
that most wouldn't even think twice about. He had more energy than anyone I
have ever known in my entire life and him
rarely if ever slept. Even as an infant and through toddler stage I was very
much sleep deprived due to this super human child!
It was really hard at first I so desperately wanted to hold my child and show
him affection like every mom does. I still remember to this day the time I
tried to hug him and he screamed at me began to rock. So let’s fast forward
from this back story up to the point of diagnosis.
KJ was seven years old and still wandering off. He would repeat sounds,
phrases, and words that he would hear especially when feeling a bit anxious. He
would still tear his clothes of screaming "I Itchy" To be straight
with you this could happen in our home, out in the yard, and I kid you not once
in a clothing store. At an ADHD medicine review,
I brought these things as well as a few other things KJ does to the attention of his doctor. His doctor
looked at me and asked if I had ever heard of Asperger syndrome. I must have looked upset, confused, and horrified
all at once. Because he smiled and then he began to explain what it was to me
and assured me he wasn't calling my son names or anything of the sorts.
Little did I know that this was a journey that we were on; more like a roller
coaster ride that I couldn't get off so I might as well stay on, hold on tight,
and enjoy this ride. I did not know what was facing the Gilman family at this
time. I did not know that we would face some pretty horrid discrimination nor
did I realize that I would have the strength that I have now.
Sure I am not always the strong woman that appears on the outside there are
moments, days, months where I feel defeated by not being what my son needs me
to be. I have overheard people whisper (or at least they thought they were
whispering) making comments about us or our son. In fact, I have had people flat out get in my face and tell me
their opinion. No, I am not ranting or
whining; mostly what I am doing is therapeutic. To write it down...or type it
out...
We can fast forward a little more...I have seen KJ accomplish things like going
from mostly resource room to mostly mainstream classes. I have watched my son
endure both physical and emotional pain from peers and sadly some adults. Lets
FFW just a tad more...Our boy graduated high school and he had some pretty good
grades (yes I am taking a moment to brag on my awesome child...just FYI I have
four amazing children but right now the spot light is on KJ)...He was pretty
much all mainstream except one class (due to schedule conflicts). He has an
amazing view on his life. He knows that he is loved, his parents stand by him
and advocate for him, and today my son gives me hugs. For most people this is
nothing but to the Gilman family this is huge.
He has an imagination that most wish for. He can come up
with; book ideas, movies, and show ideas
on the spot. He is funny, he makes us laugh. He Has overcome obsticles that have
been in his way and shown doubters that he truly can accomplish what he sets
his mind on.
I know that sometimes I have to bite
my cheek and grin and nod but there are times where this mom has to whip out
her "Super Hero Mom" cape. So I may not literally have a cape and I
know that I am not a super human. I am a wife, mom, daughter, sister, aunty and
most of all I am an advocate and educator to those who don't know. I am still
on this roller coaster and today I am hanging on for dear life. No matter what is
thrown at me I will make it through this day.
I am going to close with this post I made on my facebook
today.
I think it is safe to say parents
with children who have Autism, ADHD, Tourettes etc are often judged pretty
harshly by society...I also think it is safe to say that our children are
judged even more harshly. Today I REFUSE to let society define myself or my children. Only one can define us and HE is all
that matters. I usually pick a song on my playlist to be my theme song for the
day and well today I have two. The fact that they were top on the list I don't
think it was coincidence; Song 1) "Overcomer" by Mandisa
Song 2) "Wanted" by Dara Maclean